Have you ever attended an epilepsy advocate event?

Hey, Friends!

It's  3 days until Purple Day! Still looking for things to do? Check out https://www.purpleday.org and sign up for the Purple Day Expo! Hurry! Sign up expires today! 

We are 8 days away from  Puple Day! There’s still time to get inspired and share your epilepsy journey.  You can get social with #purpleday or use #1in26 on your photo for Instagram, TikTok,  X, Facebook, or other social media links. Don't forget to wear purple, the color of epilepsy awareness.  

We are sixteen days away from Purple Day! Looking for exciting things to do? Be sure to check out purpleday.org for ideas. You can also post social media pics of yourself wearing purple and a fact about epilepsy such as 1 in 26 people in the United States have epilepsy.  Make it fun! Include your pets in the event. Share your photos below and how your pets help with epilepsy life. 

A friendly reminder Spring Ahead is coming. Don't forget to adjust your clocks and your body to it. Whether you have to go to bed early or make sure you take your meds at the right time, it's important to prepare for Spring Ahead. 

Next week, we enter the month of March and prepare for Purple Day on March 26th. Of course, the next thing to come is turning the clock ahead one hour. Getting enough rest and making sure you take your medications is essential.  Make sure you also have a good routine for bedtime and getting up in the morning. Do you have any other tricks or tips to prepare for springing ahead? Please share them in the Comments section below.

Do you have a favorite film about epilepsy? What in the film resonates most about your journey with epilepsy?

Recently, I sat in the optometrist’s office for an eye appointment. Lately, I have experienced an increase in ocular migraines. My left eye tends to swell up and then close after seeing an aura of color, usually in the dark blue, green, or sometimes yellow light. I admit I hadn’t gotten a new pair of glasses in six years. When I met the optometrist, it was wonderful. After describing my history, she informed me she did her thesis on epilepsy and migraines with colored lenses. Starting on my journey twenty three years ago, only a handful of doctors understood the benefits of colored lenses for people with photosensitive epilepsy and ocular migraines. One happened to be my optometrist’s mentor, my former opthlamologist also affected by epilepsy. He did a seminar on epilepsy and colored lenses. How cool is that?

Does the sun bouncing off the snow trigger your epilepsy? What steps do you take to help reduce sun blindness? 

Have you ever felt an increase of seizures during the winter season?  You are not alone! The drop in barometric pressure, lack of sunlight, and the darkness are some possible triggers. So, how do you manage when the winter season makes you miserable? 

Do you have a special journal to keep track of your seizure or do you use an app?